I've told my medical history so many times this year I could recite it in my sleep. ENT. Dermatologist. Gynecologist. Oncologist. Ophthalmologist. Genetics. Each one listens and takes a few notes, looks at the one piece of me that belongs to their specialty... and sends me on to the next one.
And somewhere between waiting rooms, that little voice whispers: Maybe it's you. Maybe you're a hypochondriac.
I know that voice. I've known it since I was 5 years old.
Growing pains
If you've been reading this blog for a while, you know this part of the story. When I was a little girl, my mom took me to the doctor almost every week. I couldn't eat, my stomach hurt all the time, and I was wetting the bed. The doctor said it was growing pains. Then she said I had a school phobia and needed more attention at home. I loved school.
She never once felt my stomach.
By the time a different doctor took one look at my swollen belly and sent us to emergency, it had a name. Ovarian cancer, at ten. (I wrote the whole story in My Story back in 2013, if you want to go back.)
I learned two things that year. That I was tougher than anyone expected. And that when something is wrong with my body, I might have to be the one who insists on it.
"Probably appendicitis"
Fast forward to 2022. I was living with friends in New Zealand, helping out as a live-in nanny when the second COVID wave hit. I was starting over after a pretty traumatic breakup. One night I got up from the couch, nearly passed out, and came back with pain right over my appendix. My friend, who's a pharmacist, and I sat there analyzing my symptoms like the two health nerds we are. It was after 10pm and I didn't want to waste anyone's time and I certainly did not want to sit in the ER all night so I went to bed.
The next day I called the symptoms hotline and after a 45 min conversation, the nurse talked me into going to the after-hours clinic "just to be safe." They sent me to emergency. Eight hours in triage, scan after scan. I remember thinking how thorough they were being.
Then a young doctor asked if I had any family in New Zealand. I said no. He asked if there was anyone I might want to call. I said no, not really. I had no idea what he was getting at.
He took me into a private room (honestly, it was a broom closet) and told me yes, I had appendicitis. But they'd also found a large mass on my right kidney, and they were sure it was cancer.
I was in shock. I didn't know what to do or who to call. So I called my ex-boyfriend. We'd broken up not long before, after two years together. I thought he was my forever person, but there just wasn't room in his life for me as he'd just gone through a horrible divorce and was dealing with a narcissistic ex-wife and three pretty entitled teenaged daughters. He asked what I expected him to do. I dunno... jump in your truck and come give me a hug? I hung up feeling really stupid for calling.
"Nothing to worry about"
The next year was one of the worst of my life. They took my kidney and suddenly I had all of the symptoms of kidney failure. Ironically, all the years that I had a tumor in my kidney, my kidney function was perfect. That's why it was undiagnosed for about 10 years (based on the size of it).
I was living with friends and felt like a HUGE burden. I was still helping out with their kids but I felt useless. I was in bed recovering most of the time. I hadn't worked since COVID started in 2020, when I'd moved cities for that relationship and given up my massage clientele. Now I couldn't work at all. The anxiety came, then the panic attacks, the insomnia, the depression. I cried every day. It was the dark night of my soul.
The specialist told me the tumor was encapsulated, he got it all, and I was "cured." No reason to worry. Then my second routine scan showed small nodules in my lungs that hadn't been there before. He said they were completely nothing to worry about. He never referred me to an oncologist. He said it was unnecessary.
With my history, I couldn't let it go. I reached out to doctors in Canada who knew me, and they told me to come home for a second opinion. After more scans and tests, I had my answer: Stage 4 renal cell carcinoma.
I flew back to New Zealand with the results. My specialist still didn't believe it. I felt gaslit and I started getting really angry at the health system in New Zealand. Who could I trust?
I learned that the only treatment option for kidney cancer was immunotherapy and targeted therapy. It was a fairly new form of treatment, only available to me in New Zealand if I had private health insurance, which I did not.
My anxiety got worse. I made the hardest decision of my life. Everything I owned had been sitting in a 20-foot shipping container since COVID, and I sold all of it. Everything I loved, my life was in New Zealand. My friends, my support network, twenty years. I had nothing in Canada to come back to, but I had access to treatment here so Blue and I got on a plane. My family didn't offer the support or love I desperately needed. I have 5 siblings but none of them had room for me or Blue.
Looking well
I don't know what I expected but the first year back I was on "active surveillance," which means they watch how fast the cancer is spreading before they treat it. That was THE WORST. I was in limbo. I wasn't on active treatment, so I didn't qualify for most cancer support. I couldn't work because I was too sick, fighting a fatigue that flattened me. But I didn't look sick. People had a hard time believing I had Stage 4 cancer. I felt like I had to convince everyone I was sick, and I'm pretty sure my family thought I was faking. I was confused. The Oncologist said I needed to get back to Canada to start treatment, so why on earth did they rush me? I still had a life in New Zealand. Did they not understand how hard it would be to come back to NOTHING?
I spent that year moving between friends' places, feeling like a burden at every one. Then suddenly and out of the blue (oh the irony), Blue needed TPLO surgery on his knees. He couldn't walk up or down stairs so I moved in with my elderly mom, into her apartment. I slept on a pull-out cot in her cramped and cluttered living room while she watched TV, banged around the kitchen and smoked until 3am. I stayed there for 18 months.
My depression got worse. I was suicidal. I remember lying on that cot asking myself how my life went from idyllic to this. This is what falling from grace feels like.
What got me through was giving myself something to DO. I couldn't work, so I enrolled in school. I decided to publish my children's book, Fluffy the Extraordinary Butterfly, and I paid for all of it on credit, because with no income, credit is what I now live on. I didn't want to die without finishing something. I got my Graphic Design diploma from Toronto Film School (with distinction, I might add) and now I'm halfway through my Creative Arts degree at Yorkville University.
Here we go again
I started treatment last year, immunotherapy every six weeks plus a daily targeted drug. Then the brain fog got bad, my memory started slipping, and I was seeing double. It took a lot of asking before I got a brain MRI. It showed two old "lacunar" strokes, small strokes in the tiny blood vessels deep in the brain. One is in my brainstem, in a part that helps control eye movement. (Double vision, anyone?) It also showed some tiny bleeds and the kind of wear on the small blood vessels that usually shows up in people much older than me. I was told it was all normal. I'm still waiting for someone to explain why two strokes before sixty is normal.
My oncologist suggested I stop the Lenvatinib (the daily pill) and put me on a month of Prednisone to "cool down my system." I stayed off it for over five months and started feeling pretty good. But other symptoms kept showing up, and every time I mentioned one, I was told it was normal and had nothing to do with my treatment. So I stopped mentioning them. Until recently.
And now there's the new stuff. Nosebleeds that wouldn't stop and a crusty nose, which earned me two ENTs, a biopsy, a cauterization, and two prescriptions for Vaseline (I learned that Castor Oil is much better). A few months later I had a hole in my septum the size of a dime. Purplish blisters on my skin that started small and spread to my elbow and knee. A lump growing under the skin on the bridge of my nose. Another one in the corner of my eye that grew back almost as soon as it was removed.
Nobody can tell me what any of it is yet.
I've done what I always do: I've read and researched everything. One thing I know for sure: you have to be your own advocate. Sometimes you just have to take matters into your own hands. At the risk of sounding like a true hypochondriac (I am definitely NOT), my "self diagnosis" list has narrowed down to a few possibilities. Granulomatosis with polyangiitis (an autoimmune condition that inflames small blood vessels and can eat away at the nose). Sarcoidosis (clusters of inflammation called granulomas that can show up in the skin, lungs and nose). Squamous cell carcinoma. Or atrophic rhinitis, which could explain the nose but not the rest. I'm not a doctor and I could be wrong about all of them. But I need someone to look at all the possible things it could be and HELP me.
Why I'm writing this
Because I know I'm not the only one. If you've been passed from specialist to specialist, if you've been told it's normal or it's stress or it's nothing, if you've started to wonder whether you're imagining it... you're not crazy for asking.
Hypochondriacs imagine illness. It wasn't all in my head before... Ovarian Cancer, Strokes, Kidney Cancer, and what the heck else have they missed?
So I'll keep climbing this one. One mountain at a time.
If you're in a dark place right now, please reach out. In Canada you can call or text 9-8-8, any time. I'm so glad I'm still here.
~ Tracy




























